It's that Time of month again...ughh. I feel awful , inside and out. I'm sooo tired and weak every month for at least 2-4 days b4and during my cycle. I'm sure I'm not the only Cmt girl who feels my pain. I make sure I take my Isotonic vitamins everyday and it definitely helps me. Compared to how I used to feel b4 I started taking these vitamins. Ive been on them for about 5 months now and I'm so glad I did. My cramps are barely there ...as I am comparing to my worst pain w/out vitamins. I remember the raw milk also helped my cramps. But if u buy raw food or any raw , make sure it's from a good source /farmer.
Looking forward to tomorrow.. Another sunny day. Hope I get to get out....

It been a good week ..phillies r doing Awesome , my birthday was good..and I'm enjoying the spring weather. I have noticed tho ..that yesterday was 80degrees and I felt really numb, and weaker. So now I'm worried about the summer. If it's not 70-78 degrees, than I feel it ! I always thought the cold was worse, but after the last few Hot days, I was wishing it was cold. I can't make up my mind. Ha. They both Suck! I got an email today from a 27yr old , Adam. He lives in South Africa!! I have never in my life thought ppl from SA would be contacting me with CMT. He and I have been talking and he's very handsome and nice.
Ty Adam for reaching out! And I hope to one day meet you..to travel all over this world and meet others with Cmt.
I'm a little sick today. Head cold, and Allergies. It gets so bad at times. Claritin helps me tho.
Ok. I'll ck in soon! Film is coming Along..:)). This is gonna b a good summer!!

"BERNADETTE" - LIVING W CMT - CHARCOT MARIE TOOTH

I saw new footage for the Documentary!! Wow!! U r all gonna really see what has been going on and how CMT is Really real!!! Stay tuned! :). The music As well is making this film even More captivating!! And seeing my Dad again .....the best gift of All!

Phillies are doing Great !!! I love watching them play!

Book Project

My friend Jim Sindaco is pursuing a degree in photo-journalism at Temple University in Philadelphia, PA. He recently asked me if he can write a book about my life and living with CMT. He explained that he is going to do research and spend a lot of time photographing me. It will be a hard back book and can be used in the film. I've known Jim since middle school, and I am honored he chose to use me for his project. I'll keep you posted on our progress. Hope everyone has a good weekend! Go Phils!!

New York Science Times features print article on CMT

Tuesday was a great day for me! I was featured in the Science section of the New York Times, along with others with CMT. Check out the online version at http://www.nytimes.com/2011/04/05/health/05charcot.html?_r=1. These are big steps for the CMT community and I can't wait to see what happens next :). Thanks for following me!!
GO PHILLIES!!