Friday, April 8, 2011

Book Project

My friend Jim Sindaco is pursuing a degree in photo-journalism at Temple University in Philadelphia, PA. He recently asked me if he can write a book about my life and living with CMT. He explained that he is going to do research and spend a lot of time photographing me. It will be a hard back book and can be used in the film. I've known Jim since middle school, and I am honored he chose to use me for his project. I'll keep you posted on our progress. Hope everyone has a good weekend! Go Phils!!

Thursday, April 7, 2011

New York Science Times features print article on CMT

Tuesday was a great day for me! I was featured in the Science section of the New York Times, along with others with CMT. Check out the online version at These are big steps for the CMT community and I can't wait to see what happens next :). Thanks for following me!!