Thursday, April 21, 2011

"BERNADETTE" - LIVING W CMT - CHARCOT MARIE TOOTH

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6 comments:

  1. UnknownDecember 12, 2013 at 11:21 PM

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  2. UnknownDecember 12, 2013 at 11:44 PM

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  3. UnknownDecember 12, 2013 at 11:50 PM

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  4. UnknownDecember 13, 2013 at 12:02 AM

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  5. UnknownDecember 13, 2013 at 12:35 AM

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  6. UnknownDecember 13, 2013 at 1:04 AM

    First I commend you on your efforts and your father's for
    leaving behind a mark of importance for the rest
    living with CMT, I have always been a fighter even though they told me that the odds are against me I pushed myself even harder just to maintain a balancing act in life to fit in, never giving up and rebelling against medical standards.
    My intention has been just for helping myself and others
    by bringing the effective procedure to the majority that
    are effected by neuromuscular disorders. The rest of
    the world does not understand those that live with CMT.
    I've been diagnosed with CMT a rare type in early
    childhood, I recently watched Bernadette's video and
    discovered that I am not the only one being misunderstood
    by disguising a problem. I have been doing searches in
    the medical world for advances for a long time, I came
    across number of ways that can be effective. From my own
    experience in understanding the problem I came across the first procedure which never saw the light of day, even
    though it had reached phase 3, an article by Dr.Lee Sweeny at Penn State University named the (insulin growth factor-1 benign virus) they called it every couch potatoes dream meaning individuals with muscle atrophy could take a dose and sit back and wait for the muscles to grow back, also successful implementations for damaged nerve conductivity with various nano procedures. Since my teenage years in the 90's I have kept busy finding various breakthroughs, every year hoping for having a chance to obtain these cures. Unfortunately I did not have people behind me to help with the efforts. My goal was to generate enough capital to fund my own laboratories to to actually bring the effective know how, and put it to use. I am currently still active in rebelling against the mistreatment of the disabled and in return am being retaliated against. Who has the right to prevent us from obtaining our solution. The essential solutions for neuromuscular problems, etc., almost everything that may seem impossible has a fix, starting with the code to various physical applications. It is just a matter of having the necessary funding to make things happen. The word research is repetitive, and is an escape route for not disclosing solutions for the benefit of financial gain.

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