Btw....the fundraiser is June 17th, fri. At 9pm. $30 open bar/ food. Come support the first Film ever being done about living with CMT..thank u all!!

Today was a much better day ...I feel ready and excited for my Film Fundraiser!! I'm excited to see all my friends and family! Some ppl w CmT r coming to meet me!! This is gonna be a night I'll never forget!!! So I'm getting ready this week. I have been out and about more and it's nice to feel a part of society again. I go thru that every so often.
Ok..I'm done. Gn.

Today feels like summer...it's hot but I love it. I have been going over my moms house and swimming. It feels great to stand walk hop skip and jump again...in the water:/. My mom heats the pool, and is in the process of getting a chair lift to get me in and out !! I'm excited for that. I remember sitting out there and jumping in the water..diving, walkin in and out all alone...Independence is what I crave most!!!! But I'm also ok with my fast progression of Cmt bc it's what was planned for me. I see that Now...

Not a good night. Can't sleep bc my mind is racing ..bitter sweet holiday today at my moms. Missed my dad by our pool w us. It f-ing sucks !!! My Gmom isn't doing good(moms mom). I'm so miserable. Ppl lately have lied to me to protect my feelings...ughhh. Can't they hear me whn I say PLZ Don't lie to Me! !! That's all I ask.............

I'm holding a Fundraiser on JUNE 17th in essington , PA for The film BERNADETTE
plz join me at the
Deck at Harbor Point
101 Taylor Ave
Essington PA

$30 per person includes music, open Bar from
9-12am. DJ out on the deck and we will be filming so I would like to meet some new Cmt friends and we can possibly interview for the film!
Ty for ur Continuing support !
Xo

Today I was at an elementary school w/ carol Lue talking about Cmt and the book Arlene on the scene" a true story for children about a young girl w CMT. It went well
Glad I was a part of it.

I miss my Dad soo much. This film is my life and I can't Not think of him. I miss and love you Dad. U know who I Always was meant to be!! Thank u for all ur wise words and actions that I carry w me .,.