Today I was at an elementary school w/ carol Lue talking about Cmt and the book Arlene on the scene" a true story for children about a young girl w CMT. It went well
Glad I was a part of it.
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My father John Recently passed away on 12-20-08. I am doing this in memory of him for he as well suffered from CMT and passed it on to me. He said in a recent video/documentary I am trying to make big...."This video is Bernadette's Song, and pretty soon the whole World will be singing it!!" So my title is for you dad, for believing in me and this project I am working so hard to make happen...I love you popps.
About Me
The most commom disease that no one heard of...
I am starting this Blog to help find awarness and attention for us Suffering from Charcot-Marie-Tooth Disease (CMT). If you or anyone you know has CMT please reach out.
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