Friday, March 20, 2009
I am in NYC working on getting involved with the HNF to help them and us who have CMT. It;s been a good 2 days so far, I am also being filmed as i write this post by Josh Taub is is helping me work on a project/ documentary about my life, my struggles, and strength living with CMT. Please visit the HNF's website at http://www.hnf-cure.org
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bern is there something wrong with the link to HNF or am i just a little slow this monday morning? thank you so much for all the info. you're such and inspiration. love you-
ReplyDeletenicole...first thing i feel awful but who is this..I cant figure it out ? and no it was my fault, i had the address wrong..i fixed it though:) thx..w/b and let me know who u r!!
ReplyDeleteso - any recent updates? -- how is the film project progressing?
ReplyDeleteI follow your news thru HNF-cure.org and other cmt links.
I and 8 members of my family have cmt so very interested.
Hope all is well with you, Bernadette,
Anita