Phillies are doing Great !!! I love watching them play!

Book Project

My friend Jim Sindaco is pursuing a degree in photo-journalism at Temple University in Philadelphia, PA. He recently asked me if he can write a book about my life and living with CMT. He explained that he is going to do research and spend a lot of time photographing me. It will be a hard back book and can be used in the film. I've known Jim since middle school, and I am honored he chose to use me for his project. I'll keep you posted on our progress. Hope everyone has a good weekend! Go Phils!!

New York Science Times features print article on CMT

Tuesday was a great day for me! I was featured in the Science section of the New York Times, along with others with CMT. Check out the online version at http://www.nytimes.com/2011/04/05/health/05charcot.html?_r=1. These are big steps for the CMT community and I can't wait to see what happens next :). Thanks for following me!!
GO PHILLIES!!

New York Times

Hi, I know it's been a while but I'm going to start posting more haha! Today the New York Times launched a segment on Charcot-Marie-Tooth. I was featured in it along with 5 others who have the disease. Check it out at: http://well.blogs.nytimes.com/2011/03/31/the-voices-of-charcot-marie-tooth/. Things are good, feeling good... getting ready for the warm weather, and my birthday is coming up.

NORD Newsletter

Check out the recently published NORD newsletter and share to spread awareness about CMT!!!

http://www.rarediseases.org/files/newsletter-fall-2010.pdf

I/M BACK:)

Its Been way too long..I finally got back on here...things r goin great with the Film..Josh and Jeff officially started editing today!!! Please pass on www.bernslife.com thx

Raw Milk

I have been recently drinking raw milk and i can't believe the benefits I've recieved! I you google benefits of raw milk, you can see for yourself. I pick it up every tues. so i drink about a gallon a week...and I feel great...It helps with my arthritus, and i feel more energized and my skin feels different....i can go on and on...Thanks to Arlene Foreman, who was my psychologist when i was 20 yrs old..and who i still talk to every now and then. she has been drinking raw for 10yrs now and been telling me to drink it, so i finally did, and i'm so glad i did: thanks Arlene:)