Today feels like summer...it's hot but I love it. I have been going over my moms house and swimming. It feels great to stand walk hop skip and jump again...in the water:/. My mom heats the pool, and is in the process of getting a chair lift to get me in and out !! I'm excited for that. I remember sitting out there and jumping in the water..diving, walkin in and out all alone...Independence is what I crave most!!!! But I'm also ok with my fast progression of Cmt bc it's what was planned for me. I see that Now...

Not a good night. Can't sleep bc my mind is racing ..bitter sweet holiday today at my moms. Missed my dad by our pool w us. It f-ing sucks !!! My Gmom isn't doing good(moms mom). I'm so miserable. Ppl lately have lied to me to protect my feelings...ughhh. Can't they hear me whn I say PLZ Don't lie to Me! !! That's all I ask.............

I'm holding a Fundraiser on JUNE 17th in essington , PA for The film BERNADETTE
plz join me at the
Deck at Harbor Point
101 Taylor Ave
Essington PA

$30 per person includes music, open Bar from
9-12am. DJ out on the deck and we will be filming so I would like to meet some new Cmt friends and we can possibly interview for the film!
Ty for ur Continuing support !
Xo

Today I was at an elementary school w/ carol Lue talking about Cmt and the book Arlene on the scene" a true story for children about a young girl w CMT. It went well
Glad I was a part of it.

I miss my Dad soo much. This film is my life and I can't Not think of him. I miss and love you Dad. U know who I Always was meant to be!! Thank u for all ur wise words and actions that I carry w me .,.

It's that Time of month again...ughh. I feel awful , inside and out. I'm sooo tired and weak every month for at least 2-4 days b4and during my cycle. I'm sure I'm not the only Cmt girl who feels my pain. I make sure I take my Isotonic vitamins everyday and it definitely helps me. Compared to how I used to feel b4 I started taking these vitamins. Ive been on them for about 5 months now and I'm so glad I did. My cramps are barely there ...as I am comparing to my worst pain w/out vitamins. I remember the raw milk also helped my cramps. But if u buy raw food or any raw , make sure it's from a good source /farmer.
Looking forward to tomorrow.. Another sunny day. Hope I get to get out....

It been a good week ..phillies r doing Awesome , my birthday was good..and I'm enjoying the spring weather. I have noticed tho ..that yesterday was 80degrees and I felt really numb, and weaker. So now I'm worried about the summer. If it's not 70-78 degrees, than I feel it ! I always thought the cold was worse, but after the last few Hot days, I was wishing it was cold. I can't make up my mind. Ha. They both Suck! I got an email today from a 27yr old , Adam. He lives in South Africa!! I have never in my life thought ppl from SA would be contacting me with CMT. He and I have been talking and he's very handsome and nice.
Ty Adam for reaching out! And I hope to one day meet you..to travel all over this world and meet others with Cmt.
I'm a little sick today. Head cold, and Allergies. It gets so bad at times. Claritin helps me tho.
Ok. I'll ck in soon! Film is coming Along..:)). This is gonna b a good summer!!