NORD Newsletter

Check out the recently published NORD newsletter and share to spread awareness about CMT!!!

http://www.rarediseases.org/files/newsletter-fall-2010.pdf

I/M BACK:)

Its Been way too long..I finally got back on here...things r goin great with the Film..Josh and Jeff officially started editing today!!! Please pass on www.bernslife.com thx

Raw Milk

I have been recently drinking raw milk and i can't believe the benefits I've recieved! I you google benefits of raw milk, you can see for yourself. I pick it up every tues. so i drink about a gallon a week...and I feel great...It helps with my arthritus, and i feel more energized and my skin feels different....i can go on and on...Thanks to Arlene Foreman, who was my psychologist when i was 20 yrs old..and who i still talk to every now and then. she has been drinking raw for 10yrs now and been telling me to drink it, so i finally did, and i'm so glad i did: thanks Arlene:)

scooter

Well, i found out last week that I got Approved for a new scooter from American Mobility. They are great, and really worked hard to get me a scooter. It arrived and the First thing a did was talk me 4 dogs for a walk with Laura...I always wanted to walk my dogs, but never could...so It felt great!! Some neighbors saw me, and I was a little embarresed, but I had to just smile and swallow my pride. Then , this weekend i got to go to the field my nephew plays baseball at, which i could never do before b/c of the long walk, and I hung out with my nephews and brother and sister-in-law...It was great.. I also went to the mall too...people stared, probably wondering why I, a young girl who Looks ok sitting down, was in an electric scooter, but i just smiled:) Thank you american mobility, and susan christy from Bryn Mawr Rehab. in Malvern, pa. for all your hard work in getting me this life-changing scooter!!!! I can't wait to see the world!

Today was a good Day!! I Have 4 dogs, since I decided not to have children, I still wanted to nurture and love, so I am offically a mom of 4...dogs. "Dogs are just children with fur!" :) Me and Laura saved a baby robin bird today. We found a bird in my mom's backyard who couldn't seem to fly. My mom called the cops but since it was a holiday weekend, animal control was closed. So Laura and I took over...We talked to her, pet her, and tried to feed her. My mom, and others said we were wierd for picking it up and petting it...and esp. because we named her, "Bernice" lol we took lots of pics too!! I called several places but wild bird center was closed do to the holiday weekend. So we packed her up in a cardboard box, and went to the SPCA. They said they don't take wild life. Gratefully, there was a sweet, kind Lady there named Sarah, who was rescuing a dog, and saw we were sad, and dissapointed. She was ironically a wild life nature teacher, and said she would take it home and let Bernice free in the woods in her yard. She sid Bernice is probably not gonna make it, but it's just nature's way:( We were so sad and confused of what to do. She saw that we couldn't do the hard work, and just let her go in the woods to die, so Sarah offered to do it for us. I will never forget her, she was so kind, and said we had a big Heart for taking the injured Bird and trying to save it's life!! So we said our goodbyes to Bernice and wished her well. I will never forget my new furry friend, Bernice, or Sarah who took her for us...She was an angel in disguise. Today was a Good Day.

blah blah blah....I lost again at poker...i am such a sore looser...Josh and Jeff are coming over on thurs to film more of me and interview me for a NYC film Festival. They are gonna present My documentary...wish me luck:)

Im frustrated...i 've came so close to winning a seat to the world series of poker, but still not in. I have met some people from facebook who contacted me who have CMT..which was nice to hear from them. I hope to reach more people. Some people said they saw the HNF video part 1 and 2 on You tube..they typed in Charcot-Marie-Tooth and saw the video,..i felt like a bit of a celeb. when 1 guy said he saw me on you tube and then looked me up on facebook:)